Initiatives
Projects, infrastructures, observatories, and collaborations across our focus areas.
BeeMyBlood
Access to safe, compatible blood products is not only a clinical issue; it is an infrastructural and governance problem.
Equitable Health Infrastructures
Read moreSwissNeuroRehab
Neurorehabilitation pathways are fragmented across institutions, cantons, and disciplines.
Equitable Health Infrastructures
Read moreCareWatch
Harm, discrimination, and systemic failures are often invisible in health systems.
Trustworthy Health Systems
Read moreTREVOR
Patients with chronic or complex conditions face fragmented information, inconsistent guidance, and poorly coordinated services.
Care Navigation & Patient Agency
Read moreEMMA
Mobility barriers strongly shape access to care, employment, and social participation, yet remain poorly integrated into health system design.
Care Navigation & Patient Agency
Read moreEDITSCD
Gene therapy and genome editing approaches for sickle cell disease require rigorous evaluation frameworks that go beyond clinical efficacy to assess equity, access, and long-term governance.
Rare & Neglected Conditions
Read moreASCertain
Many populations remain statistically invisible.
Rare & Neglected Conditions
Read moreESCF Collaborations
Patient organizations are often structurally under-resourced and weakly integrated into research and policy infrastructures.
Rare & Neglected Conditions
Read moreLancet Haematology Commission on SCD
Global policy on sickle cell disease suffers from fragmented evidence and weak patient inclusion in priority-setting.
Rare & Neglected Conditions
Read moreHELIOS Network
Hemoglobinopathies research remains fragmented across disciplines, countries, and data systems.
Rare & Neglected Conditions
Read moreWAI Think Tank
AI governance is dominated by technical and corporate framings that often exclude critical perspectives and participatory approaches.
Trustworthy Health Systems
Read moreConvivial Infrastructures
Most digital infrastructures increase dependency rather than autonomy.
Equitable Health Infrastructures
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