BeeMyBlood
Systemic Problem
Access to safe, compatible blood products is not only a clinical issue; it is an infrastructural and governance problem. Patients with chronic transfusion needs—such as those living with sickle cell disease—are disproportionately affected by shortages, mismatches, and fragmented supply chains. Current systems are optimized for aggregate efficiency, not for equity, specificity, or continuity.
Existing Landscape
Blood systems are often organized around national or regional silos, with limited interoperability, weak anticipatory capacity, and little patient-level personalization. Data about demand, phenotypes, donor availability, logistics, and long-term outcomes remain fragmented across institutions and registries.
What We Build
BeeMyBlood is a federated digital infrastructure that anticipates blood needs using longitudinal, real-world data; supports phenotype- and antigen-specific matching; integrates donor recruitment and retention tools; connects blood centers, hospitals, and patient organizations; and enables public-interest digital twins of blood systems.
Our Role
Convivens Lab coordinates the design, governance, and evaluation of BeeMyBlood as a public-interest infrastructure. We lead participatory co-design, data governance frameworks, interoperability standards, equity-aware evaluation, and consortium building.
Evaluation Strategy
We evaluate BeeMyBlood not only on technical performance, but on equity of access, reduction of transfusion delays, patient-reported outcomes, institutional trust, and system resilience.
Partners
HUG – Hôpitaux Universitaires de Genève
Geneva University Hospitals is our primary clinical partner for several initiatives including TREVOR, BeeMyBlood, and SwissNeuroRehab
Université de Genève
The University of Geneva is an academic partner for research collaborations across multiple focus areas
European Sickle Cell Federation
ESCF is a key partner for our work on sickle cell disease, including EDITSCD and participatory research initiatives
INSERM
The French National Institute of Health and Medical Research is a research partner for European collaborations
Opportunities
We welcome collaborations with national blood services, rare disease networks, digital health regulators, and public funders interested in equitable blood system transformation.