Back to Initiatives
HELIOS Network
Systemic Problem
Hemoglobinopathies research remains fragmented across disciplines, countries, and data systems.
Existing Landscape
Research networks often lack shared ontologies, interoperable data spaces, and governance frameworks for collaboration.
What We Build
We support HELIOS through shared ontologies, interoperable data spaces, and governance frameworks.
Our Role
We support data interoperability and participatory evaluation within the network.
Evaluation Strategy
We assess research coordination, data quality, and collaborative output.
Opportunities
We welcome research partners interested in hemoglobinopathy infrastructure.